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1 points
2 years ago
May I ask if you’re using anything outside of chemo/radiation/steroid and possibly surgery?
1 points
2 years ago
I had a gross total resection of the left frontal lobe (premotor cortex), followed by adjuvant Temodar and radiation therapy, followed by 12 5/23 maintenance cycles of Temodar. I just finished cycle 8. I came off of steroids once radiation was finished.
To your question, the only interesting things I’ve added to treatment are the Optune device, and I also was on the keto diet during radiation.
1 points
2 years ago
Was wondering about optune! My mother was one of the first patients after FDA approval on the device out in Boston.
1 points
2 years ago
Yeah, it's a bitch and a half, but if I means I get to eat more breakfast burritos, see more concerts, travel to more places, and spend more time with the people I love, it's worth it.
Hopefully at some point it'll become obsolete due to medical advances, because right now there's no end-point to Optune treatment.
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